Month: September 2013

HE did NOT sign up for this…but Beth and I kinda did

If you have been following the latest news over the past 7 days about Jack you know that it has not been good.  In a matter of seven days we learned quickly about chiari malformations, cerebral tonsils, CSF, …

A harsh dose of reality and a path of continued hope

On my post last Friday, I told you I would update you and share events with you whether it be good or bad.  Here goes: You may recall that Jack was having some issues with pressure on his …

Jack Burke, NF, MRI’s and Progression

If you are reading this then you were probably redirected from facebook. The last 24 hours has been very challenging for us.  As you may know, yesterday Jack had yet another MRI.  Again, he came through it amazingly …