Jake's Blog

CureNFwithJack on The Golf Exchange presented by the Honda Classic.

On Sunday, I was invited to talk about the CureNFwithJack Tournament in West Palm Beach.  The hosts Russ Evans and Craig Dolch were so great and did a terrific job with the interview and getting the message across.  I tried my best to inform folks and not sound too foolish!  Click on the link below to take a listen and if you want to sign up you can do so at this link:  http://curenfwithjack.com/... Continue Reading

CureNFwithJack and Pandora's Box

Burke, Jack Burke
It has been a while since our last update and lots has happened. So many people continue to keep Jack in their thoughts and actions. We had a record breaking Yard Sale in July, Allison Maffei and her children did a coffee and donut fundraiser which educated about 100 NEW people about NF while raising over $1,000.00. The Budds Family. The Moss Family. The Flynn Family and their daughter Emma.... Continue Reading

Allison, Ansley, Blake and CureNFwithJack

This morning I received the video you see here from our friend and tremendous supporter Allison Whitley Maffei.  This is one post I really do not have to write too much about because the video says it all. "If you thing you are too small to make a difference, try sleeping with a mosquito". I hope you enjoy.

Valor, Wisdom, Presence and Brotherhood

Brothers in Arms
I don't attend church services very often for reasons that are too complicated and quite frankly irrelevant for this post.  Having said that, I attended a service yesterday at a local church called Stone Creek.  It was nice to do so with Beth and the kids for Father's Day.  Pastor Steven Gibbs does a great job but honestly I often go for the music. Yesterday though, Pastor Gibbs got me pretty... Continue Reading

Jack's Journey

Jack's Journey
This has been a busy week for the Burke family. On Monday we premiered this film about Jack's Journey battling Neurofibromatosis (NF) at our 3rd annual Atlanta CureNFwithJack Golf Classic. The golf tournament was well attended (we even had a waiting list), was great fun (Jack got to shoot a real canon to start the day) and we raised money and awareness about Neurofibromatosis. Today was... Continue Reading

I got caught...

Welcome to CureNFwithJack golf
My last update was just a week or so ago.  I have received a lot of feedback about the update and noted that many people had said I didn't focus on too much about Jack's course of treatment, etc.  Instead I focused on a lot of the GOOD that has transpired from people responding to Jack and his challenge.  The news articles, the money raised in his name ($400,000 in 2013-2014), the upcoming "Front... Continue Reading